I am an African American female who has been diagnosed with Sarcoid of the skin. I have since lost 85% of my hair and it is NOT growing back. When I was first diagnosed, I would see these scaly flaky spots which would peel away (along with my hair). By the way, I am also taking Prednisone to treat my Rhumatoid Arthritis. I would however like very much to have my natural hair as the wigs are hot, unnatural and unattractive.
There is no cure for sarcoidosis. Treatments sometimes exploit the use of systemic and topical steroids. Local steroid injections into specific lesions sometimes help; the use of methotrexate (an immunosupressive agent) also helps in some people. I have little experience in this awful disease. You need an expert in this arena for treatment, but don’t blame your doctor if the treatments do not work.